Patient advocacy.

Watch our lung cancer advocacy series

Patient advocates have transformed the level of cancer care, prominence of the patient voice, research funding and much more by becoming effectively organised, educated and active in various networks of influence. While lung cancer is the leading cause of cancer death worldwide, it still lacks the proportion of organised advocacy you see in other cancer areas – like breast cancer.

Worth watching/joining this three-part educational online series which aims to support and motivate more individuals into various forms of lung cancer patient advocacy.

This series was developed following our Co-founder and Chair’s award of an IASLC Patient Educational Award in 2023.

Watch the recorded discussions

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How do you get started to lung cancer advocacy? How do you find your niche? How you do balance paid work and advocacy? These are just some of the issues raised in this engaging and lively discussion with these lung cancer advocates each trail blazing a way forward in various different ways. Watch to hear from:

  • Annabelle Gurwitch, NY Times bestselling author, actress, activist and patient advocate

  • Aurora Lucas, Independent lung cancer patient advocate and Equity Researcher in training

  • Caleb Egwuenu, independent lung cancer and cancer patient advocate throughout Africa and the world

  • Graham Hall: Lung cancer patient advocate and Deputy Chair & Co-Founder, ALK Positive Australia

  • Summer Farmen: Lung cancer patient advocate, Board Member, ALK Positive Inc, ALKtALK Co-host and Program Coordinator

  • Yvonne Diaz: Lung cancer patient & research advocate; Co-founder & Chair, Oncogene Cancer Research; Board Member, ALK Positive Inc. and Member, Lung Cancer Europe

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Jill Feldman and Dusty Donaldson have been involved in lung cancer advocacy for over 13 and 19 years each respectively. How can we learn from these amazing, talented advocates who have been through the early days of advocacy in the lung cancer arena? These ladies, along with a number of other early ground breakers, have helped shift the paradigm of patient involvement, care, research and more. We tackle questions around defining issues, avoiding burnout, how to make greater impact, training resources and more.

  • Jill Feldman, lung cancer patient and advocate, Co-founder EGFR Resister and champion for all

  • Dusty Donaldson, lung cancer survivor; Founder, LiveLung and President, Lung Cancer Action Network (LunCAN)

  • Hosted by Yvonne Diaz: Lung cancer patient & research advocate; Co-founder & Chair, Oncogene Cancer Research; Board Member, ALK Positive Inc. and Member, Lung Cancer Europe.

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Every individual’s advocacy can make a big difference in advancing outcomes in cancer. But how can working with allies and partners extend your reach?

This video sees several leading patient advocates making big differences through their own efforts and their partnerships with patient organisations.

This recording covers everything from finding the right fit, using your skills and developing new ones, and much more. Watch to hear from:

  • Anne-Marie Baird, Lung Cancer Europe

  • Terri Conneran, KRAS Kickers

  • Amy Moore, LUNGevity

  • Ken Culver, ALK Positive Inc

  • Yvonne Diaz, Moderator: Lung cancer patient & research advocate; Co-founder & Chair, Oncogene Cancer Research, Board Member, ALK Positive Inc. and Member, Lung Cancer Europe

IASLC Patient Educational Award

This series is an advocacy project created by our Co-founder & Chair, Yvonne Diaz, following an award of an IASLC Patient Educational Award in 2023.

The IASLC is passionate about including the patient's voice in events and resources. The Patient Educational Award supports patient advocates in immersing themselves in live educational events. Click the photo to find out more.