Privacy policy.

We take great care to preserve your privacy and safeguard any personal details you share with us. We aim to be clear when we collect your data and not do anything you would not reasonably expect.

This policy explains how we collect and use your personal information and your rights to have your personal data protected. Examples of your personal information would include your name, address and email address.

By understanding more about you and what you want from us, we are able to make sure that the experience you have is both positive and helpful. Your personal information can help us to plan more effectively and efficiently so that we are in the best position possible to meet our mission to i9mprove the life expectancy for people living with oncogene-driven cancers that tend to originate in the lungs.

Oncogene Cancer Research is a registered charity in England and Wales (1206988).

Contacting us
Any questions, comments or requests about this privacy policy are welcomed and should be addressed to:

Data enquiries

Oncogene Cancer Research

23 Penzance Street

London W11 4QX

UK

Or by emailing at admin@oncogeneresearch.org.

Why we use your information
We will only use your information where we have a legal basis to do so and will always respect your rights.

Where we use your information, it may be because you have consented to us doing so or because we consider we have a legitimate interest to do so. Other reasons may include using information because we have a legal obligation to do so or because we have to fulfil contractual obligations.

Some examples are shown below: 

  • You have given us your consent to use the information for a specified purpose, such as consenting to a patient story or one of our public campaigns – such as Lung Cancer Awareness Month

  • We have a legal obligation to use your information, for example to claim Gift Aid

  • We are using your information in pursuit of a legitimate interest, for example:

o   To ensure we meet our regulatory requirements as a charity

o   To manage our financial transactions and prevent fraud

  •  Where you completed a contact form, patient story questionnaire or similar

  • We need to use your information to fulfil a contract with you, but this is unlikely to apply to you if you support us through donations or volunteering

    Specific cases:

  • Fundraisers: We may receive your contact details from a third party with whom you have registered for raising money for the charity. In this case, we will use the registration details provided by the event organiser to send you information about the event and your fundraising activities. For example, if you choose to raise money for us through an online fundraising portal such as JustGiving and give consent for them to share your information with us, we will receive your data in line with their privacy policy and use it to keep in touch with you about your fundraising.

  • Corporate partners: If you are a corporate partner or we believe may have an interest in becoming a corporate partner, we will contact you using information that is publicly available on your website, or information that you have provided to a charity representative in order to contact you about potential ways in which we can work together.

  • Healthcare professional: When you join our network of professionals, register for an event or get in touch regarding our services we may use the personal information you provide to contact you in the future about training, events, professional development opportunities and any of our services which we believe may be of interest to you. We rely on your legitimate interest to do this and have completed a balancing exercise to ensure that your privacy rights are protected.

  • Recruitment: When applying for a role with us by email and / or through a recruitment agency, the personal data you provide as part of the recruitment process will only be held and processed for the purpose of the selection processes and in connection with any subsequent employment unless otherwise indicated. By submitting your personal information, you are consenting to us holding and using it. You will be asked to provide certain information including your name, contact details, employment history and qualifications. This information is mandatory in order for us to consider your application, communicate with you about your application and where successful, follow up with references or meet our statutory and internal monitoring and reporting responsibilities. We may also review social media profiles of applicants, such as LinkedIn, to the extent that it is relevant to your application. Unsuccessful applicant data will be held confidentially for a period of six months before it is deleted.

  • Volunteers: This includes trustees, volunteers on committees and teams and other types of volunteers of the charity. We use the information you have provided as part of your volunteer application to:

    • Process your references and disclosure and barring service (DBS) check, where applicable,

    • Contact you about your volunteer role and any Oncogene Cancer Research volunteering updates,

  • Send you any relevant documents or information relating to your role by email or post whilst you are a volunteer

  • We rely on legitimate interest to process your data for the purposes of acting as a volunteer. However, for Trustees we also have a legal obligation to collect certain types of information

  • If you begin employment with us, we will put together a file about your employment. We keep the information in this file secure, and will only use it for matters that apply directly to your employment

  • Once you stop working for us, we will keep this file according to our record retention guidelines. You can contact us to find out more about this.

Information received from or shared with other organisations
We at Oncogene Cancer Research never share your personal data, unless consented by you for individual purposes – such as in a joint marketing campaign with another charity or organisation.

We will only use your information for the purpose for which it was obtained as set out in this policy. We will not sell or share personal information with any third party organisation for their own purposes.

Your information may be shared with us if you have provided your consent or have submitted information to a third party supplier in order that we can provide the service that you have requested. For example, a fundraising platform or company that arranges challenge events to raise charity funds.

We do not purchase any data from third party suppliers but data from other organisations maybe passed to us if you have given them consent to have your information shared with us or where they are acting on our behalf to provide a service for you.

When you submit your information to a third party, it is important to check their Privacy Policy for details of how they use your data before submitting your personal information.

How we store your personal information
We will keep some records permanently if we are legally required to do so. We may keep some other records for an extended period. For example, it is currently best practice to keep financial records for a minimum period of 8 years to support HMRC audits or provide tax information. We may retain data to defend or pursue claims. In some cases, the law imposes a time limit for such claims (for example three years for personal injury claims or 6 years for contract claims). We will retain some personal data for this purpose as long as we believe it is necessary to be able to defend or pursue a claim. In general, we will endeavour to keep data only for as long as we need it. This means that we will delete it when it is no longer needed.

Your data protection rights
Under data protection law, you have rights including:

Your right to data portability
You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances. Please allow 2-4 weeks for the processing of such requests and contact us through the information provided on page 1.

Your right of access
You have the right to ask us for copies of your personal information.

The right to correct and update the personal data we hold on you
If the data we hold on you are out of date, incomplete or incorrect, you can inform us and your data will be updated.

The right to have your personal data erased
If you feel that we should no longer be using your personal data or that we are unlawfully using your personal data, you can request that we erase the personal data we hold. When we receive your request, we will confirm whether the personal data has been deleted or the reason it cannot be deleted (for example because we need it to comply with a legal or insurance obligation).

The right to lodge a complaint with the Information Commissioner’s Office
If you have any concerns about our use of your personal information, you can make a complaint to us at our registered address or via admin@oncogeneresearch.org.

You can also complain to the ICO if you are unhappy with how we have used your data. The ICO’s address is:           

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

Helpline number: 0303 123 1113

ICO website: https://www.ico.org.uk

 

To contact us about anything relating to this Privacy Policy, please reach out to us via our registered address or admin@oncogeneresearch.org.

Last updated: March 2024