Registries and trials.
Registries.
More and more women around the world are being diagnosed with lung cancer during pregnancy. This is increasingly the case for oncogene-driven lung cancers like ALK, EGFR, RET, ROS1 and others. The Florez Lab is seeking to understand incidence and more of these cases.
This international registry is open to everyone from around the world. It takes approx. 20 mins to submit a case. Updates will be published every 6-12 months. To find out more, contact: YoungLungResearch@DFCI.Harvard.edu.
The Florez Lab Pregnancy & Lung Cancer Registry
The ALK Life Study
ALK Positive Inc is undertaking a longitudinal survey of ALK+ cancer patients to help improve the life expectancy and quality of life for ALK+ lung cancer patients worldwide. The data will be used to help find improved treatments, improve quality and consistency of patient care and support more funding for ALK+ lung cancer research.
The registry is open to every ALK+ lung cancer patient or their caregiver - the higher the number of participants, the more the data can help researchers, oncologists and advocates.
Take part here. Send any questions to: ALKpositivelungcancer@gmail.com.